Evolving Opportunities and Challenges for Patients in Clinical Research
Document Type
Book Chapter
Publication Date
2023
Keywords
Health consumerism, Consumer health information, Consumer health movement, Patient empowerment, Patient engagement, Public access technologies, Personalization of medicine, Clinical research
Digital Object Identifier (DOI)
https://doi.org/10.1007/978-3-031-27173-1_23
Abstract
Motivated in many ways by the rapid evolution of information and communication technologies along with the shift toward increased patient decision-making and empowerment, changes in healthcare have had critical implications for clinical research. This chapter explores the developments impacting health consumers from various perspectives, with some focus on foundational issues in health information and communication as related to health consumerism and engagement. An overarching challenge for health consumers is the information environment, which is increasingly social, and underlying issues from emerging technologies and applications contribute to the changing nature of patients’ participation in research. Not surprisingly, core findings from communication and information behavior research have relevance for our current understanding and future models of the evolving role of the health consumer.
Was this content written or created while at USF?
Yes
Citation / Publisher Attribution
Evolving Opportunities and Challenges for Patients in Clinical Research, in R. L Richesson, J. E. Andrews & K. F. Hollis (Eds.), Clinical Research Informatics, Springer Nature, p. 473-494
Scholar Commons Citation
Andrews, James E.; Eldredge, Christina; Applequist, Janelle; and Johnson, J. David, "Evolving Opportunities and Challenges for Patients in Clinical Research" (2023). School of Information Faculty Publications. 699.
https://digitalcommons.usf.edu/si_facpub/699
